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CMS Office of Minority Health Working to Achieve Health Equity





Advancing health equity during National Sickle Cell Disease Awareness Month

During September, the Centers for Medicare & Medicaid Services Office of Minority Health (CMS OMH) recognizes National Sickle Cell Disease Awareness Month [ https://www.cms.gov/priorities/health-equity/minority-health/resource-center/resource-center/health-observances ]. Sickle cell disease (SCD) is a chronic disease that causes the body to produce abnormal blood cells that cannot deliver oxygen to the rest of the body properly. These cells can restrict blood flow, leading to serious health problems like anemia, chronic pain, heart disease, infection, and even stroke.

Sickle cell disease affects about 100,000 people in the United States, but more than 90% of people with SCD are Black, and between 3% and 9% are Hispanic or Latino. Additionally, about 1 in 365 Black babies and 1 in 16,300 Hispanic babies in the U.S. are born with SCD. One in 13 Black babies are born with sickle cell trait (SCT), meaning they only have one sickle cell gene. While people with SCT usually do not have any symptoms of sickle cell disease, they can still pass the trait to their children. Many people with SCD report that they cannot get proper care, face stigma, and often have their symptoms ignored.

During National Sickle Cell Awareness Month, we’re continuing to look for ways to address disparities that affect the communities we serve and providing resources to help advance health equity. Share the following resources with your community this month and beyond to raise awareness about sickle cell disease.

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Resources

* Watch our Sickle Cell Disease [ https://www.youtube.com/watch?v=qK5H9fPkltc ] video to learn more about SCD disparities, symptoms, and treatment options.
* Read our CMS Sickle Cell Disease Action Plan [ https://www.cms.gov/files/document/sickle-cell-disease-action-plan.pdf ], which outlines CMS’ actions to improve health outcomes and equity for people with SCD.
* Download The Invisible Crisis: Understanding Pain Management in Medicare Beneficiaries with Sickle Cell Disease [ https://www.cms.gov/About-CMS/Agency-Information/OMH/Downloads/CMS-OMH-September2018-Sickle-Cell-Data-Highlight.pdf ], which highlights options for pain management in SCD patients.
* Read our Prevalence of Sickle Cell Disease among Medicare Fee-for-Service Beneficiaries Age 18-75 Years, in 2016 [ https://www.cms.gov/About-CMS/Agency-Information/OMH/Downloads/Data-Highlight-15-Sickle-Cell-Disease.pdf ] data highlight to learn about common chronic conditions among SCD patients and more.
* Explore our Coverage to Care [ https://www.cms.gov/about-cms/agency-information/omh/health-equity-programs/c2c/ccm ] initiative, which helps patients understand their health coverage and connect to health care services, including chronic care management resources for providers and patients.
* Review the Medicaid and CHIP Sickle Cell Disease Report, T-MSIS Analytic Files (TAF) 2017 [ https://www.medicaid.gov/sites/default/files/2021-01/scd-rpt-jan-2021.pdf ] for data about Medicaid and CHIP enrollees with SCD.
* View the Centers for Disease Control & Prevention’s Fact Sheets on Sickle Cell Disease [ https://www.cdc.gov/sickle-cell/communication-resources/fact-sheets.html?CDC_AAref_Val=https://www.cdc.gov/ncbddd/sicklecell/materials/factsheets.html ] to learn more about the disease and 5 Facts You Should Know About Sickle Cell Disease [ https://www.cdc.gov/sickle-cell/media/inforgraphics/SickleCell_infographic_5_Facts.pdf ] for more information about how to manage SCD and how it can be cured for certain patients.
* Visit the National Heart, Lung, and Blood Institute’s What Is Sickle Cell Disease? [ https://www.nhlbi.nih.gov/health/sickle-cell-disease ] webpage to learn about symptoms, diagnosis, treatment options, and more.











*CMS Office of Minority Health*  |  Working to Achieve Health Equity

"Paid for by the US Department of Health and Human Services"








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